New Genes Discovered for Celiac Disease

To all the doctors who say I don’t have Celiac Disease, I now say: “So, guess the world isn’t flat after all, huh?!” 😛

During this last year of my Celiac journey, I could not find one traditional western medicine doctor who could open his/her mind enough to allow for the fact that I have a problem with gluten. Not one. Out of more than a dozen. Despite the blunted villi found in my (single sample!) endoscopy… despite elevated IgA and IgG anti-gliadin antibodies… despite the Nutritionist-controlled Gluten Challenges that resulted in 5 inches of abdominal bloating within an hour and a half … despite drastic physical and psychological changes a gluten-free diet have produced… not one MD could believe I had Celiac. Actually, not one could admit that Gluten Intolerance/Sensitivity even exists. They said that all my symptoms are all just in my head. All because a single $800 blood test for the (then few) known Celiac genes came back negative.

But now, according to a study published earlier this year by Nature Genetics, it seems there’s evidence that another 13 regions of genes with immune functions can show the predisposition for Celiac Disease. So now the number of known genes that can indicate you’re susceptible to celiac disease has nearly doubled, jumping from 14 to 27. Many believe this could be just the tip of the iceberg: in the years to come we may find there are dozens, perhaps even hundreds, of Celiac genes.

My nutritionist just came back from a conference and told me all about a new test that will be coming out (next year, she thinks). She was talking to a rep for the company and was discussing my case with him. But when she told me about it, she said “But you don’t need to take any tests. You KNOW what gluten does to your body.”

And she’s right. I do know. And if you’re reading this article, then you know as well. So let’s listen to our rational, thinking brains that say we have Celiac. (Or call it whatever you want: Gluten Intolerance or Gluten Sensitivity… it’s all the same thing). Let’s not let our feeling, emotional hearts doubt what we know just because we don’t take “real” blood tests or they come back negative. Because as more and more genes are discovered and more and more new tests become available, it’s going to be easy to be seduced by costly, unnecessary tests. We know what our bodies want (and DON’T want: gluten!). We need to listen to what we know and be comfortable with the fact that we DON’T need to take anymore tests.

What we need to do is save that money up so we can afford to buy gluten-free food. 😛

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